Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Wednesday, March 2, 2011
We have weight gain!!
I have his formula to ~22calories/ounce, and he had been averaging ~1100cal/day; which is enough for weight maintenance but not gains for this active toddler. Since starting the probiotic, he averages ~1300-1400cal/day!
We are ecstatic. This is great news, on so many levels- to see him growing....to go from less then 10th% to in the 20th%tiles is so very rewarding! I watch his growth chart closely....it is a big gauge for his nutrition status (for the mommy in me as much as the dietetic technician in me!). It also confirms how, if his gut is recovered from reactions- he can, and does, gain weight. A good sign.