Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Thursday, March 31, 2011

Still waiting....

for the final interpretation of results from Dr.J.   She sent the results right before she went to a national allergy conference in California.    She is back now, do doubt trying to catch back up after being gone a week.   She has been available for quick questions but we have not received the final results.   The results she did send, with some beginning interpretation, do fill in some holes- but I'd rather hear the final wording from her, and also the "what do we DO about it, and how do we FEED this child".  

We've gone back and forth with this probiotic- the benefits outweighed the negatives but just kept us on the revolving door....I tried to add banana for prebiotic- not ready.   I tried to add the bifida strain - seemed to over activate his immune responses.   So, Dr.J suggested trying one that has lactobacillus and bifida strains in one pill- the Kirkman's Pro Bio Gold.   We started that today.   Today went very well.   We will see how the night goes and the next few days, and continue to pray that we have found the probiotic "fit" for him.  

So, we're keeping busy waiting, and surely we'll have results soon??  In the meantime, I am working on our upcoming Benefits!  Stay tuned for more information on that!


  1. Hello, it seems that you are almost a FPIES DR, is it possible for me to talk to you...I am sorry..but I need

  2. Im still waiting too! Cant wait to hear how Dr. J will interpret Sam's results. Waiting stinks!