Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Tuesday, March 15, 2011
Mom's Helping Mom's...
As I learned, and carried forward my experiences to share, and then learned some more; I began to see the need to organize some of this information more (in more places than just our ever-tired mommy heads!) and began to formulate how to put it all together. I tried to put posts of my research on my blog, started with Allergy Nutrition. And then, Little man's illness became complex and my time was devoted to caring for him, so this was just a project that got put on the back burner. And I continued to put my research on my blog, but have not put as many updates on how Little Man is doing, simply. So, I have continued to work on putting together information as I research it (much of it already displayed here on this blog); but have decided that a new blog will be a good place to organize this information....to pay it forward...to become a resource of information compiled to pass along for a new family, or a vetren family needing clarity on something like Non-IgE food allergies or oral tolerance mechanisms. This is a very complex diagnosis, I am merely learning alongside the other moms- learning as we go along. Through searching for answers for my son, researching this illness has made me driven, driven to keep searching for help for my son, and driven to help others along the way with this information- if I can.
The new blog is here: My FPIES File Cabinet. This FPIES Mudpies blog will remain active for updates specific to Little Man, his FPIES and our families journey through it (which I think my non-FPIES family and friends will appreciate!). I will reference my file cabinet, if/when I have research that I have done to share- it may benefit another FPIES family, it may not apply to their journey but the information will be there, where I can reference it when needed as I continue to research as much of this diagnosis I can to turn over every piece I can to solve my Little Man's puzzle.