Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Corn Allergy

Little man has multiple FPIES triggers (the food protein that triggers a reaction/symptoms); however corn is his worst and it is the most difficult to avoid.   Corn is in so many things.  So, I wanted to have a specific reference list for places that are my 'go-to' for corn sourcing.

  1. Corn Allergy Website- this was a site developed by a Corn allergic person, it is still the 'main' go-to for learning about corn allergy; however it isn't maintained so other bloggers (corn allergic) are taking up the baton of continuing to provide information, adding to what Jenny developed here.   You will want to reference her Corn List for sure. Begin to familiarize yourself with what words indicate corn, corn-y-ness, or could be 'corn-taminated'; once you become familiar with that, you can navigate a food label much easier (depending on your other allergens of course). 
  2. Corn Allergy Girl - An individual with a severe corn allergy who, similar to the Corn Allergy Website, she took over a website that was started by another blogger and continues to compile information as she finds it, not only to keep herself safe but to help others. It has a lot of great information- from how to find the corn in foods, to questions to ask when compounding medications. She also pins several visual aids on Pinterest. Seriously, she has a TON of information. 
  3. Free Eats Food Corn Free Baking and Cooking - has some great information for cooking and baking, she breaks it down well especially for the beginner (and likely overwhelmed) corn allergic. Her advice is a very important piece to remember when facing a corn allergy (or really, any allergy): "My last bit of advice is to listen to your body.  Individual sensitivities vary widely.  While some people can handle corn derivatives just fine, others react to the minute amounts of corn that may show up in an ingredient that is highly refined.  Figure out what works for you, and what your triggers are (food diaries are great tools!).  The diet can be limiting (especially when you need to eat gluten-free or have other food allergies) so don’t needlessly cut out a food that you are able to tolerate just because someone else with a corn allergy has a reaction".
  4. Corn Allergy and Intolerance Community (Facebook forum) - This is a group on Facebook, to my understanding, it was born out of the Delphi Forum Avoiding Corn group (which I have visited but don't frequently go to,simply because FB is just quicker).   These members are amazingly helpful and respond quickly, it is my day-to-day go to. There are several members to the group and corn allergy ranges from corn-light to full blown anaphlyaxis from corn in the air.   I go to them for references and questions when I need information, or support on teasing out what I might be 'corning' Little Man with. 
  5. Corn Freedom - Is another corn allergy page, it is run by a mom of a son with a corn allergy who is advocating for corn allergy to be a recognized allergen. 


  1. Hi
    Is there an aminoacid based formula for children with FPIES that has no corn or corn syrup?
    thank you

  2. No, no amino acid based formula's without corn syrup (in this country). There is a hydrolyzed protein one that uses tapioca syrup instead of corn and has been tolerated by many kids who struggle with corn. It is called Alimentum Ready To Feed (has to be the ready to feed kind). It is hydrolyzed milk proteins though so if highly milk allergic, trial with caution (and doctors supervision). My son couldn't tolerate that one either. We tried 8 different formula's with no luck. He thrives best on Hemp milk as his milk replacement with his tiny menu.

  3. Hi Joy,

    I'm Hülya from Turkey. My 6 months baby may have chronic fpies even to elemental formulas. Could you please contact me: