FPIES stands for Food Protein Induced Enterocolitis Syndrome and our youngest son has it. This blog follows his story on this journey: our challenges, our triumphs, our adaptations as we navigate through this new world created by FPIES.
Mothers Intuition
Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Sunday, March 6, 2011
Probiotic Day 9
We will also be getting another weight check later this week, and hopeful he is continuing to gain weight as he continues to eat ~1300-1400calories/day (24hrs/day)!
Hello, do you think is possible for me to contact you somehow,I needed some advice with my 8 month baby..feel lost....;-)
ReplyDeleteSorry don't know how to add msg with name..;-)
ReplyDeleteOk, now I did, ;----)))))
ReplyDelete