FPIES stands for Food Protein Induced Enterocolitis Syndrome and our youngest son has it. This blog follows his story on this journey: our challenges, our triumphs, our adaptations as we navigate through this new world created by FPIES.
Mothers Intuition
Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Wednesday, October 20, 2010
Moving on....
So, on to spinach. I bought some today- steamed it and pureed it. We plan to start tomorrow. I have no idea what to expect.
I also got Probiotics today - ordered hypoallergenic ones online. I am anxious to see how he would do on these but it will have to be a sort of trial in itself. So, I have to wait a bit for that. When we need a break, between one of the next food trials.
Today, was a break. Today he had a good day. Lots of playing on his own, little whining, sleeping ok, eating well. Lets hope it continues through the spinach trial!
Good luck, Joy! Glad to see that millet is a pass, even with small amounts. Have you tried the flour yet? There is this Indian bread that you can make with just millet flour and water. It entails the mixture being cooked for a while and actually cooked twice (you cook it to make the dough and THEN cook the bread-- think polenta) Anyways, let me know if you want more info!
ReplyDeleteOh Joy, I'm so behind in everything, but thrilled to be catching up with you guys. Millet and plums, even in small amounts that will have to be in rotation, are very exciting. Spinach was crazy easy for us and we hope it is for you too. Spinach opened the door to quinoa and I hope that is the case for you as well. Hugs, hugs and more hugs! Jamie
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