Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Wednesday, October 20, 2010
So, on to spinach. I bought some today- steamed it and pureed it. We plan to start tomorrow. I have no idea what to expect.
I also got Probiotics today - ordered hypoallergenic ones online. I am anxious to see how he would do on these but it will have to be a sort of trial in itself. So, I have to wait a bit for that. When we need a break, between one of the next food trials.
Today, was a break. Today he had a good day. Lots of playing on his own, little whining, sleeping ok, eating well. Lets hope it continues through the spinach trial!