FPIES stands for Food Protein Induced Enterocolitis Syndrome and our youngest son has it. This blog follows his story on this journey: our challenges, our triumphs, our adaptations as we navigate through this new world created by FPIES.
Mothers Intuition
Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Saturday, October 23, 2010
Forgiveness....
Maybe because I am simply tired. Maybe because I have so much on my mind for new posts to share but too much to put down in words. Maybe because I don't have any better way to say this message than how this writer says it here...I will simply share this post today. And also connect the reader to an excellent blog for support for families with children of rare, chronic diseases. I find inspiration in others' journey's inspire me.....
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