Well, the other night at dinner- he was "crying" for our food once again. He has done this in stages for the past 8mo....when his gut is inflamed, he doesn't even ask for food. When he is healing, he begs. It is enough to break a mother's heart in a million pieces and some days so hard to not just give him SOMETHING! I caved....I went to the fridge, where I knew the peach was - got a knife and sliced it up for him. I put it in teeny-tiny pieces (the size of his millet puffs) and he picked it up (although slippery) and ate it!! He picked up another piece and ate it!! He tried to eat a bigger piece and gagged on it....but he recovered quickly and went for more. He wanted to hold the peach, touch all aspects of it. He started to get frustrated that he couldn't pick up the pieces fast enough so I cut up a few more pieces and put it in his mesh feeder. He is a little old for a mesh feeder and at first didn't know what to do with it but he got it! He loves peaches!!
FPIES stands for Food Protein Induced Enterocolitis Syndrome and our youngest son has it. This blog follows his story on this journey: our challenges, our triumphs, our adaptations as we navigate through this new world created by FPIES.
Mothers Intuition
Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Thursday, October 28, 2010
Just Peachy....
Well, the other night at dinner- he was "crying" for our food once again. He has done this in stages for the past 8mo....when his gut is inflamed, he doesn't even ask for food. When he is healing, he begs. It is enough to break a mother's heart in a million pieces and some days so hard to not just give him SOMETHING! I caved....I went to the fridge, where I knew the peach was - got a knife and sliced it up for him. I put it in teeny-tiny pieces (the size of his millet puffs) and he picked it up (although slippery) and ate it!! He picked up another piece and ate it!! He tried to eat a bigger piece and gagged on it....but he recovered quickly and went for more. He wanted to hold the peach, touch all aspects of it. He started to get frustrated that he couldn't pick up the pieces fast enough so I cut up a few more pieces and put it in his mesh feeder. He is a little old for a mesh feeder and at first didn't know what to do with it but he got it! He loves peaches!!
oh this is so fantastic! Doing a happy dance for you and Sam! and the pureed, frozen 'dots' for finger foods is a great idea with the spoon aversions. I am stealing this idea!
ReplyDeleteYay!! I hope peaches ends up being a pass for Sam! I love the freezer dots idea! Simple and easier for little fingers to pick up!
ReplyDeleteI love your blog and am so happy that peaches are working out. Fantastic.
ReplyDeleteAwesome idea with the finger foods and awesome that he is doing so well with the peaches! Also, I know I only see him in pictures, but he is starting to look a little fuller in the face! It looks like he is gaining!!! Can it be?
ReplyDelete