Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Sunday, October 10, 2010
We are considering Millet a "pass" for now. The awake-in-the-middle-of-the-night symptoms we were seeing were from his iron supplement being given too late in the evening (and not enough "food" with it). So, we have changed his dosing (along with getting a new compound from Walgreens of a better tolerated/tasting iron) and he appears to be tolerating this better. He will continue getting his millet puffs that he loves so much, but millet porridge (and millet flour cookies) are on the back burner for now and we'll come back to them. Only time will tell and we have to start somewhere; and we have to press on....
So, the other day- I bought plums. I washed them, peeled them (just decided I would also not do the peeling right now), chopped them up and boiled them down with some water to a soft mush. I then put them in the blender. They were ready for him to "trial". I let them cool overnight and they were ready. I also made an attempt at fruit leather with some of the cooked/pureed plums. It didn't completly turn out but I will try again!