Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Wednesday, June 23, 2010

More Birthday Fun

Today isn't his birthday (that has already passed) but we celebrated again anyway! We were on the road for his actual birthday, and he got exactly what he needed most --a diagnosis with an action plan for care and treatment. With hope, that maybe by his 2nd birthday he'll be able to have a real birthday cake (maybe still not with typical ingredients but with more than we have to work with now?). We'll throw a big party then, but for now -- a celebration just the 6 of us will do, with real presents but a not-so-real birthday cake.

Fire hazard aside, this time he was going to get to blow out his candles. I found this styrofoam cupcake at Michael's and poked his candles in to it. He thought this was great fun!! He didn't actually succeed in blowing any out himself but he sure had fun trying.

We found this cute little "Makin Mud Pies" outdoor kitchen at Toys R Us. All the boys got to work right away making mud pies....

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