Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Saturday, June 19, 2010

Do you suspect FPIES?

Disclaimer: this is a work in is merely my list of what articles I found helpful. Some are links, some I do not have links for yet, some I just have abstracts.

FPIES research and studies/what’s known:

Begin here for a Food Allergy and Protein Intolerance Overview:

1. Protein Intolerance.

In 2009, a comprehensive article on Protein Intolerance, gives the differentials for diagnosis (Celiac, EE, FPIES, Enteropathy’s)

2. Food Allergy: Review, Classification and Diagnosis.
In 2009, from Children’s Hospital of Philadelphia Division of Allergy and Immunology. Dept. of Pediatrics.

Then move on to FPIES study’s and research:

1. Clinical Features of Food Protein Induced Enterocolitis Syndrome.
In 1998 by Dr.Sicherer (Mt.Sinai, NY) wrote some of the early articles/studies.

2. FPIES: Clinical Perspectives
In 2000 by Dr.Sicherer (Mt.Sinai, NY)

3. Food Protein Induced Enterocolitis Syndrome caused by solid food proteins
In 2003 by Dr.Nowak-Wegrzyn A et. al.(Mt.Sinai School of Medicine, NY)

4. Food Protein Induced Enterocolitis Syndrome:FPIES Case Presentations and Management Lessons
In 2005 by Dr.Sicherer (Mt.Sinai, NY)

5. Food Protein-Induced Enterocolitis Syndrome: Consensus recommendations for Diagnosis and treatment.
In 2008 Japan study

6. Prospective follow-up oral food challenge in food Protein Induced Enterocolitis Syndrome
In 2009 Korean study

7. Food Protein-Induced Enterocolitis syndrome
In 2009 by Nowak-Wegrzyn (Mt.Sinai, NY). This is a follow up to 2003 published study by Dr.Nowak-Wegrzyn. Dr.Nowak-Wegryzn is in current practice at Mt.Sinai and cares for these children with FPIES.

8. Food Protein-Induced Enterocolitis Syndrome: 16-year experience
In 2009 Australian study

9. Rice: a common and severe cause of food protein-induced enterocolitis syndrome.
In 2009 Australian study

10. FPIES- a Review
In 2009, Australia (great article summary – 2pages)

Understanding FPIES (mechanisms, diagnosis and treatment)--If you’re still “hungry” for
1. Allergic Protocolitis, food –induced enterocolitis: immune mechanisms, diagnosis and treatment
In 2009 from Spain

2. A Consistent Pattern of Minor Immunodeficiency and Subtle Enteropathy in Children with Multiple Food Allergy. Article written in 2003 from the UK and offers additional clues to diagnosis:

3. Above article commentated on and referenced in 2004 in Journal of Pediatric Gastroenterology and Nutrition:
4. Gastrointestinal Manifestations of food allergies in pediatric patients.

5. Cytokine Expression in CD3+ Cells in an Infant with FPIES: case report.

1 comment:

  1. My son was just recently diagnosed with fpies, and it took forever because he had formula (hypoallergenic) until 18 months old, because he could not tolerate anything else. Then we went to about 3 different doctors who told us it was toddlers diarreah! What a crock! SO I decided to go and get an IgG test which tests for delayed food reactions! What a difference in my little boy and has had more solid stools than loose. You should try and see if your doctor will order an IgG test for delayed reactions! It was a life saver! Good luck.