Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Saturday, June 19, 2010
Do you suspect FPIES?
FPIES research and studies/what’s known:
Begin here for a Food Allergy and Protein Intolerance Overview:
1. Protein Intolerance. http://emedicine.medscape.com/article/931548-overview
In 2009, a comprehensive article on Protein Intolerance, gives the differentials for diagnosis (Celiac, EE, FPIES, Enteropathy’s)
2. Food Allergy: Review, Classification and Diagnosis.
In 2009, from Children’s Hospital of Philadelphia Division of Allergy and Immunology. Dept. of Pediatrics.
Then move on to FPIES study’s and research:
1. Clinical Features of Food Protein Induced Enterocolitis Syndrome. http://www.jpeds.com/article/S0022-3476(98)70222-7/abstract
In 1998 by Dr.Sicherer (Mt.Sinai, NY) wrote some of the early articles/studies.
2. FPIES: Clinical Perspectives
In 2000 by Dr.Sicherer (Mt.Sinai, NY)
3. Food Protein Induced Enterocolitis Syndrome caused by solid food proteins http://pediatrics.aappublications.org/cgi/reprint/111/4/829
In 2003 by Dr.Nowak-Wegrzyn A et. al.(Mt.Sinai School of Medicine, NY)
4. Food Protein Induced Enterocolitis Syndrome:FPIES Case Presentations and Management Lessons
In 2005 by Dr.Sicherer (Mt.Sinai, NY)
5. Food Protein-Induced Enterocolitis Syndrome: Consensus recommendations for Diagnosis and treatment.
In 2008 Japan study
6. Prospective follow-up oral food challenge in food Protein Induced Enterocolitis Syndrome
In 2009 Korean study
7. Food Protein-Induced Enterocolitis syndrome http://journals.lww.com/co-allergy/Abstract/2009/08000/Food_protein_induced_enterocolitis_syndrome.16.aspx
In 2009 by Nowak-Wegrzyn et.al (Mt.Sinai, NY). This is a follow up to 2003 published study by Dr.Nowak-Wegrzyn. Dr.Nowak-Wegryzn is in current practice at Mt.Sinai and cares for these children with FPIES.
8. Food Protein-Induced Enterocolitis Syndrome: 16-year experience
In 2009 Australian study
9. Rice: a common and severe cause of food protein-induced enterocolitis syndrome. http://www.fetalneonatal.com/content/94/3/220.abstract
In 2009 Australian study
10. FPIES- a Review http://www.allergysa.org/journals/2009/june/food-protein-induced-enterocolitis.pdf
In 2009, Australia (great article summary – 2pages)
Understanding FPIES (mechanisms, diagnosis and treatment)--If you’re still “hungry” for
1. Allergic Protocolitis, food –induced enterocolitis: immune mechanisms, diagnosis and treatment
In 2009 from Spain
2. A Consistent Pattern of Minor Immunodeficiency and Subtle Enteropathy in Children with Multiple Food Allergy. Article written in 2003 from the UK and offers additional clues to diagnosis: http://www.ncbi.nlm.nih.gov/pubmed/12915822
3. Above article commentated on and referenced in 2004 in Journal of Pediatric Gastroenterology and Nutrition:
4. Gastrointestinal Manifestations of food allergies in pediatric patients. http://www.ncbi.nlm.nih.gov/pubmed/16207693?dopt=Abstract
5. Cytokine Expression in CD3+ Cells in an Infant with FPIES: case report.