Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Saturday, June 26, 2010
Maybe God should have made me an Octopus!
Still working on how to make some formula that could get little man to his baseline...Hemp milk does seem like a good option (until I tasted it)! But little man has already proven he will eat anything: any formula, barium, dirt, sand, cardboard, why not hemp?!
Little man seems to be getting further away from finding his baseline everyday....