Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Monday, June 21, 2010

Finding a baseline

Phrases like.....Instincts, advocacy, proactive in treatment, Dr.Mom....all new to me on this FPIES journey but I have picked them up and added them to my daily load. Although I can't always say I am good about remembering I am carrying them. That gets tricky, when FPIES has stolen your confidence as a mom, to remember that it also have given you so much more that you didn't even know was really inside you.

Despite a diagnosis (still new), we haven't found our little man's baseline yet -- and now with first food trial (and fail) we are only further away from this. Little man has been trying to tell us something....he is limiting his formula intakes -- simply does not want to eat, is he telling me his gut is reacting to the trace proteins in the corn syrup solids and has been all along? Maybe....we need to listen more.

Be Still....hear the whisper of God....

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