Hemp Milk

Given Little Man's symptoms since corn fail, Dr.P at CHOP has advised that we need to get him off of Neocate as soon as we can. He advises Hemp milk as a good starting alternative. Of course, it will need fortifiers as it is low in protein and fats and just plain calories but one step at a time- we need to see if he'll drink it. Dr.P said if he won't take it at first, to mix it 1/2 and 1/2 with his formula for a few bottles but really try and get him on the 100% Hemp as soon as possible. He really feels that his symptoms and extreme sensitivity, as well as continued issues since starting elemental are related to the corn intolerance and trace proteins in the Neocate.

He also agrees that we should hold off on food trials of FPIES trigger foods until little man is to a baseline and healthier...he has been just getting so much sicker by the day and it is so hard to see him go down this road of not thriving again. He advises, get him on the Hemp and get him eating and tolerating this, then get some fruits and veggies in his "safe/pass" foods and then when you have him built up to a good baseline, trial a grain and a meat (these can be iffy so have to proceed with caution and it's pretty much a guess work with FPIES to which grains and which meats they can tolerate).

I'm exhausted since corn fail, but so is little man - he falls asleep at random times throughout the day...I walked into the living room today and he had just crashed asleep on the couch, he usually requires us to rock him to sleep. Ok, so maybe it is a good thing- maybe he is so much more relaxed since we are able to give him ibuprofen that isn't hurting his belly and so he is catching up on some sleep. I would be reassured by that if he actually looked like he slept when he woke up, or if he acted like it- but he looks and acts so tired.

I ordered the Hemp milk online this morning, overnight shipping- should be here tomorrow....hopefully he likes the taste! Thinking of having him on something that is truly nourishing him and healing his gut- getting to see him pain free and distress free, and maybe even start passing some foods gives me chills of excitement!