Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Wednesday, November 23, 2011

"What's That?"

At Little Man's 2yr.well child visit with the pediatrician, our biggest concern- outside of his FPIES (but that is managed by his GI)- was his speech.   He clearly had good processing but his speech was somewhat behind where his brothers were at that age, but still within the "window" of ok for his age.   Give it 4-6mo. is the recommendation of our pediatrician, we would wait and see.   Over the months he has, in little bits, added new words to his vocabulary.    Today, as we read an ABC book, he pointed to the pictures, "what's that?" he asks over and over;  and I would answer...a ball, a cup, a fork, a gorilla, a horse, ice, stars,....object by object, word by word, he repeated every one.  What's more, he went back through and 'read' the book himself- saying the words we had just read.   His vocabulary is finally really starting to take off in the way I expected it to and hoped it would months ago. 
Here he is reading his Micky Mouse "toodles" book, which he loves (we don't even have cable and he's rarely seen the show but enough to make an impact on him I guess!) He loves this seek-and-find book.   He's growing up so fast! 

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