Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Tuesday, November 22, 2011
FPIES Fundraiser at The Pizza Ranch!!
This past spring, my sister held a benefit for our little man. It was extremely successful in that it raised a lot of awareness in our home town community, 3 local newspapers did articles, people wrote to us from reading those articles, and of course people attended the benefit to meet our little man and ask their questions and learn about what FPIES means to him, and our family. At that same time, in the spirit of raising awareness, I also booked "Tip Night" at a local Pizza Ranch to raise awareness in the community we live in now. Unfortunately, we had to reschedule that as Little Man's needs were too high at that time, so we postponed it for this fall. It became scheduled for Oct.24th. Of course little man's needs have not slowed down much, but I decided we needed to go ahead with it anyway. We were blessed to have friends that were able to help- help advertise it and help work at it; because little man was actually in the hospital the week prior to the fundraiser!
The FPIES Foundation helped in making an announcement flyer for it, that a neighborly friend helped hang up around town.
It was a great event. Pizza Ranch has a program built in for non-profit fundraiser events such as this. It is called "Tip Night". You bring the waiters, you earn the tips.