Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Wednesday, November 23, 2011
FPIES is ugly, but we remain thankful.
Recently, we had a fundraiser to raise awareness, a month later and I am still overwhelmed at the response we received. Money raised, in Little Man's name, for The FPIES Foundation, to help future families in more ways than one. To enable The FPIES Foundation to provide assistance and programs, and educational materials (such as a flyer we distributed at a recent Food Allergy Fair, more on that later) to further raise awareness and support for FPIES families following in the same footsteps as we have on this journey. A treasure beyond measure, the gift that will keep giving.
Kindness, empathy, thoughts and prayers for strength and healing....all among the richest gifts we have received from family, friends, neighbors, acquaintances, even complete strangers. God has mysterious ways of showing us how beautiful His world remains- because of the very people who have shared our journey, who have provided us with this support.
God never promised there wouldn't be trials and troubles in this world, He only promised he'd help us through it. This diagnosis can be ugly, but God is giving us the graces to get through it- the strong instincts to know what to do next, the drive to do it, the graces to perservere through adversity, and the support from others. Assurances we are on the path He intends for us and Faith that there is something at the end of this journey.