Front page news!

Just in time for Food Allergy Awareness week (last week), an article on Little Man's FPIES in a hometown paper...the front page!!  It was published in the Northern Watch.   The author did a wonderful job telling our story of our FPIES journey.   It is raising awareness to this type of Non-IgE allergy. 

Our little man has what has been coined as "Atypical FPIES", this is due to his chronic ingestion of his main trigger.   There is little research into chronic FPIES but a few articles are beginning to unravel it.   His symptoms differ some from "classic" FPIES.   Classic FPIES is where the research has been, the research has not caught up to where Little Man and so many other FPIES and Protein Intolerant children are.   We have hope that by continuing to share our story, it will help to raise awareness to the dimensions within FPIES that so many of these kids experience.  And, so that families like ours will not feel they are alone.  It was others' sharing their story, their experiences, their journey that helped us see we are not alone....and that although our son has a rare allergy, he can be helped, he can heal.  And most of all, he can grow and thrive- despite all his struggles.