FPIES stands for Food Protein Induced Enterocolitis Syndrome and our youngest son has it. This blog follows his story on this journey: our challenges, our triumphs, our adaptations as we navigate through this new world created by FPIES.
Mothers Intuition
Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
what a great idea joy, looks very swish , its great he likes it. I have a little badge for Mitchy that he wheres if we go to birthday parties or big gatherings that just says DONT FEED ME FOOD ALLERGIES. The bracelet looks much nicer :-)
ReplyDeleteLove Suna and Mitchy XXxxx
This is a great idea. I have stickers that Brady wears when we are out but I like this idea. Where do you get them from?
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