Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Tuesday, May 24, 2011
Benefit/Fundraiser a HUGE success!!!
Little man's daddy and I are from small town community's. There is just something about a small town community that rivals no other community you will form. From the beginning stages of this illness with our son, we have received unending support from "back home"- by way of prayers, special sentiments and supportive words sent our way. We wanted to help all those, that have supported us all these months, to understand what this allergy that our son has is about. We also wanted to raise awareness in our communities- for those not familiar with us or FPIES. We accomplished those goals and then some. As noted in a previous post, we were published in a local paper: The Watch. That paper has far reaching clients and we received support, and donations from people we did not even know but whom had read this article! Not only that but 2 other local papers printed articles in conjunction with this article. One paper (the RLF Gazette) printing that same article and the other (Oklee Herald) printing this article I wrote for my File Cabinet blog: What is FPIES? A-mazing!! I was so surprised when my mom, who had saved the articles for us, showed them to me! As we were putting together last minute details and setting up for the benefit, I was reflecting on the success we already had....our goals already so accomplished. We had raised awareness.