Millet is a Mystery...

With all the weird symptoms we see with millet- I am ready to call it a "fail" these days but with biopsy results findings of zero inflammation- I am not sure if we are seeing a build to FPIES vs. an intolerance vs. his gut just isn't ready for a grain- even if just a pseudo grain.  I've trialed it and retrialed it so many times and looking back at my logs- all similar symptoms were there- and just kept building with each re-introduction. Although never indicating FPIES vomit/diarrhea. This fits in his delayed/build intolerance's....if we kept pushing it- would it eventually land us another FPIES class trigger food? I don't know. But here are my thoughts on what may be going on:

1. Delayed reactions:  he has always had, what we coined a long time ago as, his "honeymoon" period- he would do ok on something and then it would build and hit!

2. Constant re-exposure to a common-related proteins (also trace and cross contamination of trigger proteins) can result in chronic FPIES.

3.  If we press it- would everything related to his triggers eventually be unsafe.  Millet is in the "cereals/grains" category- but it is a seed, so a pseudo-grain. But is it closely enough related to the other grains his body has FPIES triggers to (corn)?  Rice is one of his triggers...now.  But he did not have an acute reaction to rice when we started solids, he had throwing up reactions to reintroduction of rice (after stopping it and trying oatmeal to see if I could get him to eat it better) but after taking a 3mo.break from all food and reintroducing food starting with a dozen rice puffs and getting violent vomiting did we consider it an FPIES trigger.   Also happened with dairy and soy- soy is not a clear FPIES trigger but his body was not accepting it- but it was a slower (delayed) process. Will this be the same with so many foods for him? Is it why hemp is safe, and arrowroot- as they are in their own families and unrelated to the proteins his body perceives as a threat?

How do we get past here?  How do we get off this wheel?  What do we trial next?  He has oral aversions so he doesn't want to eat just anything, but he has been reaching and begging (tantrums really) for our food.  We again, battle every mealtime, every time his brothers eat and he can't, every time I cook and he can't help me...it is torture for a mom to endure.    I just want to feed my little boy!

So, millet remains a mystery but is it teaching us something too?  For now, I have put it on the "see you later" list.   We may have already gone too far with it.  But, we'll look to retrial it again when we have more safe foods in his diet; see if we can't find a dosage that he can tolerate without symptoms -- symptoms that disrupt sleep and cause stomach aches and weird diapers, symptoms that are worrisome for building a full blown reaction.  How do we avoid these build reactions?  My thoughts keep going to a rotation diet....