Biopsy results!

Little Man had his 5th endoscopy with sigmoidoscopy on Monday.   Since the vitamin fail (due to fermented corn starch for Vit.C), he has struggled with even his safe foods.  Symptoms were confusing and ongoing.  Sleep remains disrupted but most nights we are at least seeing a pattern to that (awake every 2hours)- as long as he goes right back to sleep after his bottle, it isn't concerning (exhausting, yet but not as concerning for a food reaction).   The other symptoms have been mottling of his skin, rashes (cheeks,trunk and bottom), drooling,itching and grinding teeth (something itches in his mouth/throat).  He also has had the RRD (coined the red ring of doom) and spots on his bottom that often precedes a reaction, as well as a coating on his tongue (yeast?).  

Too many questions remained- was this all 'leftover' from the fail?  Was he still inflamed?  Was he going downhill again? Was it from the foods we previously thought as safe (millet, peaches?).    We did wait until after the vitamin to reintroduce millet, and these symptoms took a couple of days to build.  I changed the recipe, saw less symptoms so was hopeful it was just too much for his system.  Then stopped millet to see if that could get us back to a baseline.  Unfortunately, a orange pulp (yes, just a pulp-not segment or a slice, a pulp) brought on the symptoms in full force!  Stopped everything for a few days, work our way back to some sort of a baseline and then re-trialed millet this weekend with a return of some/most of the symptoms.

We can now assume it was all related to the acute reaction following the vitamin fail.  The biopsy results came back today and he is clear of any inflammation!!  So, this tells us: 1). that he is healed from the vitamin fail (3weeks); 2). That everything in his diet is safe (non-FPIES trigger)- his formula, his peaches and millet (although millet remains a mystery); 3). That we may need to do a "bland" diet after fails; and 4). That he is ready for the next trial. 

These are good results, one more step conquered.   He may need future scopes like this- to prevent him from spiraling again, as we continue to learn what intolerance's look like vs. FPIES trigger foods all compared to his baseline.