Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Saturday, January 22, 2011
Is a Corn Allergy for real?
When a mom on a corn-free babies board I visit said, "Corn allergy seems to be a pretty big nightmare but to me, it is much better to know and be able to manage than to feel like I am missing something and my baby is suffering for it."....I felt like nothing can sum it up better.
Recently, an article has gotten some wheels spinning for me (and other corn allergy sufferers). As if a corn allergy isn't very real, or that it is not important....that those suffering from it simply need to just deal with it- for the sake of the economy? That is the message I received from this article: Allergies: nothing to sneeze at.
Now, I am not one to think the world has to change to accommodate my needs, my son's allergies. What I would like though is: 1). acknowledgment that a corn allergy is very real. 2). awareness that corn is in everything (don't worry about keeping track- I will do that) and 3. DISCLOSE and LABEL that corn is in your product....and the VERY least - when I call your company to ask about the source of an ingredient, please do not tell me "I don't know where it is from, it's just not from corn"....if you don't know where it is from- it is probably from corn. It can be refined, processed, fermented, proteins removed and my son will still react to it.....so I need to know. I do not hold anyone else responsible for his allergy, but I need to know because I am.