FPIES stands for Food Protein Induced Enterocolitis Syndrome and our youngest son has it. This blog follows his story on this journey: our challenges, our triumphs, our adaptations as we navigate through this new world created by FPIES.
Mothers Intuition
Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Sunday, August 15, 2010
Hemp shake
Little Man's daddy made all the Mud Pies (aka, big brothers) milkshakes this evening. Since we introduced hemp seed cereal, and since he is feeling so much better these days with no tummy aches- little man is once again "asking" to eat. He gets quite agitated at meal times once again- and not even bringing him downstairs away from all the food will calm him down much anymore.
He wants what we have -- or at least something like it. Little man's daddy gets so creative with him and all the mud pies. Tonight, he could see Little man just needed something like his brothers. He got him a cup and a straw like everyone else -- only his didn't have milkshake in it, he had hempmilk. He was SO excited to be drinking through a straw, to have a drink like everyone else, he just giggled and said lots of "yumm,yumm,yummm's"! It wasn't anything new- just his hemp milk formula, cold, in a cup. It doesn't take much.
I have located a few different variety's of millet -- I have good feelings about this and am excited about the versatility of it. We may be doing (trialing) it this week. Stay tuned.
PS - yes, this is a grainy picture, and yes the date stamp is wrong....it's my old camera, which just happened to be in reach to capture a quick moment in time before it slipped away.....
Joy - I LOVE that you work so hard to give him some variety and fun with his limited food! We JUST discovered that giving G an ice cube in her little mesh feeder keeps her occupied and smiling - and, of course, makes me smile as well :)
ReplyDeleteYes- we do that too, along with the hemp popsicles, and ice chips. He just likes to be sitting at the table with us!
ReplyDelete