Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Sunday, August 1, 2010
...because he's not allergic to water....
Little man really enjoyed the ice chips when we were at the hospital. So, we bought him a sno cone maker so we could duplicate those at home (we have tried just chopping ice ourselves but it is just in big hunks). He thinks the chips are a special treat. That is when he isn't having hemp milk popsicles and hemp seed cereal!
Mud pies (aka, big brothers) are enjoying the sno cone machine as well, of course they get to add sugary syrup to their sno cones. We had friends over for a much needed "normal" playdate day (thanks B boys!!) and Little Man's big brother (2nd mud pie) had to explain that Little man could have sno cones "because he isn't allergic to water"! :) His big brothers really do look out for him.
I found some Hemp seeds, I've made him a cereal out of this. As his ingredient list grows, I will have to think about what else I can make out of it...but for now, he is LOVING his new food. Yesterday morning, he had his cereal while his brothers had Saturday morning chocolate chip pancakes and he got to sit at the table with them! Oh, boy what a treat that was! He sat there for an extra 20min past when they were done, just eating his cereal- licking every morsel of it until it was gone....