Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Tuesday, May 29, 2012

ProViMin Start

This weekend we went out of town.   We left on Friday, and little man did not drink his hemp milk formula all day- he was very pale and did not look well by Friday night - is this from the reintroduction of Alimentum or from taking it away??   He was sleeping a lot (not a bad thing for a travel day) but.... we were worried.  Saturday he continued to be very pale and low energy; so we decided by Saturday afternoon to give him some Alimentum in his bottles- just a 1/2-1oz. It really did help his energy and color.  And the other build symptoms didn't start creeping in until the drive home and even then, they were manageable.  Did we find a threshold?  Is this more clues to if it is enteropathy or carbohydrate intolerance?  Maybe.  Maybe we'll never know.  Maybe he'll be able to tolerate the ProViMin and we can simply move ahead.  

ProViMin is just that- Protein and Vitamin/Minerals.  It is a powder formula made for metabolic disorders.  It does not have carbohydrates and has very minimal fats (coconut oil), however it does have sodium caseinate, along with amino acids, for the protein source.   Sodium caseinate is a milk derivative.  A milk allergic person would be advised to avoid it, someone with a "light" milk allergy may be able to tolerate it- it would be the equivalent of a person allergic to milk but able to tolerate butter (doesn't happen very often).  We are essentially challenging dairy with the trial of this formula- although we will still have to trial other dairy separately.   

We started it this evening.  Tomorrow will tell us more of how he is doing, so far tonight he has been ok. 

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