Sunday, May 13, 2012
Celebrating Food Allergy Awareness Week 2012
Aside from the fact that I am so far behind on updating here on how Little Man has been getting along (it's been a busy few months), we are celebrating Food Allergy Awareness week by raising awareness to FPIES....a food allergy of the gastrointestinal tract. Today, The FPIES Foundation launched a video created for Food Allergy Awareness Week to honor FPIES and put faces (and sentiments!) to this invisible illness. I would be honored if you would watch it.
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Hi, I only stumbled on your blog by googling fpies as a friend of mines daughter has just been diagnosed with it and I had never heard of it. I thought I would just click on a post or two to read a bit about what it was like, but has it turns out I have spent the last couple of days reading the entire thing (and probably ignoring my own 8 month old in the process) I would never normally bother commenting on stuff I happened to find on line, but I just felt the need to write and tell you how amazing I think you are, how amazing your family is, and what a gorgeous little boy you have there. Your love for him shines through, and the fact he is doing so well despite everything he is going through is a testament to you and your husband and your other boys - this may sound cheesy but it seems he is nourished by your love for him.
ReplyDeleteWith best wishes for the future
Vicky
Hi, I would love to chat over email and get your opinion about my 15 week old twin boys. Are journey has been rough, went to the hospital at 12 days old with RSV, stayed 15 days and got put on antibiotics. Got released and started Prevacid. From 28 days on constantly wake with gas and stomach cramps. Tried allenemtum powder for 2 weeks and Ali rtf for 1 week and had bloody stools. They have been on elecare for 7 weeks, just had a gi scope and intestine is inflamed and food allergy is still present. Now on predisone and neocate but ydont think that is answer because it is the same. Considering trying Ali ryf again. They struggle do bad during bottles, like I am feeding them poison, just squirm and seem uncomfortable. We got a 24 hr probe as well and reflux seems to be managed, now on nexium, I would live to wean as I think it is part of the problem. Not sure if this is a good enough recap, everyday is the same, they wake all night and squirm from early hours on, as well as wake from naps. Thoughts??? Please email me lindsma4@hotmail.com, I need help!! Love your blog
ReplyDeleteGosh, my heart and prayers go out to all of you. I have been praying for little Sam Meyer and his lovely family as I read an article on him in our local newspaper and the article grabbed my heart. After reading the above postings, I will pray for the friends daughter and the two twins and their family's. God bless each and everyone of you and give you and the doctor's wisdom, guidance, discernment and may God hear and answer our corporate prayers for these little ones that are suffering.
ReplyDelete“Let the young children come to me; do not try to stop them, for the kingdom of God belongs to suchlike ones. Truly I say to YOU, Whoever does not receive the kingdom of God like a young child will by no means enter into it.” And he took the children into his arms and began blessing them, laying his hands upon them. – Mark 10:13-16