Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Tuesday, May 29, 2012

No Banana

Banana has not made the expanding menu cut.   Little man has had banana in the past, the symptoms have not been clear enough to continue or cut it, but last summer after 3 days, he had bright red flecks in his diapers so we didn't continue.    

A day a week or so back, we were at the Good Food store picking up some more maple syrup and peaches and his brother wanted banana's, he got little man excited about having banana's so I agreed to buy the banana's.   He couldn't wait to get home to eat a banana!  He was so excited, he ate most of a half of one!! Gobbled it down!  All was well and good until 4hrs later he had made a "stinky" diaper, and changing it revealed what looked like raw meat- blood mixed in, and a lot of it.   Sigh, same reaction as last summer only much quicker.  Yep, banana needs to be shelved.   Ten minutes later, another very large diaper with even more blood.  Shoot! And not even ten minutes later, another one!  Crap!! Is this going to get worse?  Are we going to see vomit?   Thankfully no, we did not but loose stools after eating banana is not ok and blood is most certainly not a good sign.   

This was actually right before the GI appointment a few weeks back and when we decided to add back in some of the Alimentum- because with the blood in his stool, he was going downhill fast again.  He had such adverse responses to the Alimentum- again making me think more of it being tied to his dissacharide (carbohydrate intolerance) deficiency because it is worse with a "flare".   After seeing the GI and getting the go ahead to stop the Alimentum, we did for a few days only to have him sink down again- low energy, pale color, disturbed sleep - not reflux but the same type when his iron is low, where he can't get to sleep or is awake in the middle of the night, insomnia).  We were planning on leaving for a long weekend (Memorial Day) and we don't want to be admitted to the hospital before that so we weigh the risks vs. benefits and decided to give him a few days of a few ounces of Alimentum again.  Back and forth and round and round and we still get the same symptoms- paleness, blue around his lips, then behavior issues, large volume stools, then disturbed sleep.  We just don't know what to make of it....clearly something isn't right... We hope he can make it through the weekend, through the travel.  We take along the Alimentum just in case....  


  1. Bananas, avocados, pineapples and tomatoes are gassed with ethylene gas. You can buy "ungassed" bananas from health food stores, but that just means that the store doesn't gas them. Most are gassed before they even leave the originating city and then gassed several times down the distribution line. One of the members of the Avoiding Corn forum spent a long time trying to find a way to get uncorny bananas for her little guy with no luck.

  2. I suspect that was the issue with banana....but pineapple too!?! I hadn't heard that about pineapple...ugh!! Thanks!!!