Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Saturday, June 4, 2011

Our boys....

Afterall, the title of the blog is FPIES and Mudpies (aka, our boys and the muddy picture FPIES creates in our world).  Our boys, our 3 other boys that I don't often speak as much about because it is our Little Man with FPIES, for whom this blog is primarily about.  

But our three other boys are a big part of this picture.  It makes things more complicated and more rewarding all at the same time.   We dismissed early symptoms of little man because of what we went through with them in earlier years; but then once we realized his symptoms were progressing- it was easier to connect them to his protein intolerance's because of what we went through with them earlier in the years.  Little man has had many days of feeling ill and reactions which makes it difficult to have 3 other boys to take care; but we also have 3 helpers and little man has 3 siblings to learn from everyday.   Having a "large" family doesn't take away as much as it adds.  

Recently, we had our benefit for little man.  Our oldest W. wanted to contribute, he came up with the idea to do a lemonade stand, offering cookies, coffee, and donuts as well.   So, then our second, J. wanted an idea of his own.   We came up with a kiddie game stand- to help the kids have fun and be included.  Giving them jobs to do during the benefit helped keep them busy and out of trouble, those were my goals.   But they surpassed all goals.  People coming to the benefit were far more than generous with the 25cent charge for the lemonade stand, W. soon found himself trying to make change for a $20 while the purchaser walked away.  W. also enlisted our third son, T. to help with the lemonade stand.  W. is good about helping his little brothers, teaching them and including them.  He gave him the job of handing everyone their purchases.  It was the perfect job for him and he took it seriously and did it with pride.   J. ran his games while giving out prizes and was proud of himself for being the dispenser of fun!

We thank all who helped our boys feel included in a special and important day for their little brother.  We are proud of them and how well they behaved and managed their roles.   We are blessed parents.  We have rewarding jobs.   Who wouldn't want to get paid in giggles, smiles and adventures?

No comments:

Post a Comment