FPIES & Mud Pies: Our Boys, Our Journey, Our New World...: FPIES Friends!

Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Sunday, June 5, 2011

FPIES Friends!

I "met" this FPIES family online last year, when she joined the FPIES babycenter group I was already a member in. She titled her post something like "MN families". I remember that post as if it was yesterday and it was almost a year ago! How exciting! Another family close by! Well, as long as you consider 5+hrs.close by! We have connected on many levels and conversations online, through FPIES support groups, facebook conversations, blogs, and phone calls but we had yet to meet in person.

Our Little Man's benefit was planned for our hometown, which was further north than they live! But we wouldn't be passing by their house on the way; but they did it one better! They came to our benefit! A 3hr.drive!! They even brought Kara to meet Sam! Kara and Sam are just a month apart, and received their diagnosis around the same time. They both have FPIES and intolerance's to milk and soy and have limited diets. They connected right away, as if they had known each other all along....much like we did!