Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Sunday, June 5, 2011
Our Little Man's benefit was planned for our hometown, which was further north than they live! But we wouldn't be passing by their house on the way; but they did it one better! They came to our benefit! A 3hr.drive!! They even brought Kara to meet Sam! Kara and Sam are just a month apart, and received their diagnosis around the same time. They both have FPIES and intolerance's to milk and soy and have limited diets. They connected right away, as if they had known each other all along....much like we did!
I have been so grateful for the friendship we share, the common ground shared in the crazy world of FPIES. Friends that become like family....