Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Sunday, February 27, 2011
Well, that is a very easy answer....his body won't accept food either. We risk a reaction, but if you can remember- we already tried a multi-vitamin and what happened? We GOT a reaction. So, if we're going to risk a reaction anyway, we want it to be on actual food. Actual food that he can develop his oral motor skills on, that can fill his tummy so he isn't hungry at night so he can rest more. Actual food that his body can get nutrients from, that fill in his tiny menu.
This is where bone broths begins to come into our picture. You know how God puts things in our path and then He keeps throwing it in the path until we finally "get it"? Well, I have come across this bone broth, liver formula, healing effects of broth, from multiple sources over the past few weeks. A few other FPIES moms have already started it and having success with it for it's anti-inflammatory and healing properties.
Little man doesn't have any active inflammation (verified on last scope) but he does need more in his diet that help build his anti-inflammatory mediators. Essential fatty acids, Probiotics, and vitamins/minerals are all things in our diets that can help build our anti-inflammatory mediators. We have essential fatty acids in the hemp milk, we have started the probiotic, and now we need rounded minerals. Bone broth, made from bones of animals (corn and soy free) will provide a two-fold effect of nutrients and anti-inflammatory properties (much like his hemp milk does for him). We have a local farm co-op that has grass/pasture fed (soy and corn free) animals where we will purchase bones from and make some broth. There are also places to purchase this online (through Amish farms), already prepared....which is a temptation with the chicken as they boil heads and feet....but chickens eat some corn, so chickens are a no-go for Little Man right now. Maybe we'll have to raise our own. For now, we will purchase lamb, beef, and maybe buffalo. We will start with the broth, and move towards a full meat trial if broth is tolerated.
It is my hopes that by filling in his gaps- the probiotic, the micro nutrients, we can begin to strengthen his anti-inflammatory mediators and begin to see more food passes, and less assaults to his system.