Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Sunday, June 17, 2012

Happy 3rd Birthday!

The day before his birthday, I told little man that the next day would be his birthday celebrating day and the plans I had for the day (church, lunch, parade, nap, cake/presents/dinner, campfire, and fireworks).  He listened intently and looked at me and said, "play lego's with daddy?".   Request granted buddy, you can play lego's with Daddy. 

We had fun at the parade, he loved all the fire trucks, and marching bands.  Then we came home and had a (late) nap- it was a HOT summer day and we were all tired while I prepared his "surprise" (he didn't know he was getting cake with frosting!).  So I set up his presents and cake and decorations while he napped.   This was right when Hubby got a fire call page- there were a few large fires and due to the nature of the fires and the heat, they were in need of extra off-duty firefighters to come in and be ready.   So, off he went.   Little Man was disappointed when he woke up from his nap and daddy was gone- he was excited about his surprise (presents and cake) waiting for him but more excited when I said we could take it all to daddy at the fire station! (he got assigned to help man a station)....he was at the station that is literally down the road from our house.   So, presents and cake went with us to celebrate with daddy (not the first time we've celebrated at the station). He had a good birthday and was a happy little boy who got 2 lego sets!   He LOVED his chocolate frosting cake!!! He licked the frosting off of all the cupcakes (which were really just his regular millet muffins).  The chocolate frosting was made from a recipe for chocolate syrup = oil, maple syrup, and cocoa- I boiled it and it thickened up nicely= frosting!  

His birthday was a quiet day at home....well, that was what it was SUPPOSED to be!   It started out quiet, but then a stool sample needed to be taken downtown to the lab...last week his GI doctor ordered some stool studies to be done- they have to be taken in when the lab is open and within 30minutes of the sample being "fresh" that didn't happen over the weekend so I wanted to get this sample in right away.   I decided a trip to the toy store could be arranged for this birthday boy to make this outing NOT about going to the lab!   Off we headed and got the sample turned in and off to the toy store but the stores weren't open yet (9am), so we went to the dollar store instead where I let him have a basket and go shopping.   Later, we went to two of little man's favorite parks before heading home for nap time.   We picked up the boys from the catechism car pool and headed home to play.  Little Man hasn't been feeling well, but he wants to play- so he will be playing nicely for a few minutes and then he will turn and just start crying over the littlest things....clearly he is just tired and feeling crappy.  I was ready for the day to be done (we still had the fireworks to do another day this week when daddy is home!).   We were sitting and relaxing downstairs and I was checking the results of that stool sample that I had turned in that morning (via an online patient portal) and found that his stool actually matches the symptoms he was having on Alimentum...bittersweet....we haven't talked to the GI about it yet so will have to go more into that in another post after we have the chance to discuss it more.  

While I was reading through this report, little man was sitting at my feet building a "fort" (more like a beaver dam)- they like to pile blankets and pillows on the floor and crawl around in and under them.   Mudpie #3 started jumping from the couch to this pile and before I could stop him, he was mid jump when little man moved to get up and his brothers knee hit his head.   At first, I was just upset at his brother for hurting him- who was finally relaxing and playing nicely and then saw some blood so rushed him upstairs to get a better look at it....yep, this is about when the panic set in because he SPIT HIS TOOTH OUT IN MY HAND!!  AGH!!  What???!!!  WHAT?!    I immediately called hubby- should I take him in?   They didn't do anything the last time we took him in, and this too looks like a clean break.   But WHY?  His brothers knee did not hit that hard- how did it knock out a TOOTH!?  Is there something wrong with the strength of his gums?  Or is it just because that one got knocked a little loose and the gum was still healing, from last week when he knocked the other one out?   Maybe.  It, of course, bled a lot but the bleeding stopped fairly quickly.   We went to visit daddy at the station to help him feel better and he is handling it like a champ (it's mommy that is still a bit freaked out by it). 

What a way to celebrate a birthday! 

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