Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Sunday, April 8, 2012
How to go from Feeling Powerless in Every Sense to Finding Peace in Every Situation?
FPIES can feel powerless, waiting for reactions, and over reactions of the immune system that is attacking something that is meant to nourish the body. Being the parent that has to chose which foods, in a gamble fashion, that may or may not cause the reaction. To cause your child to be sick - violently and/or for days on end. So, how do you find peace in that? Everyone finds it in their own way...
My faith helps me with mine, but even with a strong faith- I had to allow myself the stages of grief for this loss to nurture my child through food and instead to nurture him through a chronic illness that is little understood.
I still have times of feeling powerless with this allergy; but for me the key has been in being in tune with my inner peace and strength from Above, and not search for my own power,to help me on this journey. Peace provided by Divine Love, and surrounded by family and friends that care so much for our family and our little man. Friends that are like family, family that are friends....helping us in our time of need- through strength and prayers, and hope. And of course, the newly found friends that make up our FPIES Family, friends that hold us up in prayer and who inspire our hope by learning together on this journey.
We trust in our Faith and that provides us Peace.