I reflect on what she is writing because so much of it are my very own thoughts. There is a connection between FPIES moms because we can so easily relate to one another with this journey we have been thrown into before our babies are even past the infant stages. Just when you think you're settling into a routine past the infant days, you are thrown into the life of a chronic illness.
A mother is created to nurture, a baby is born completely dependent on that need. A baby soon grows into a toddler, preschooler, and before you know it, they are off to school. Children grow up so fast, life happens in the blink of an eye.
Motherhood is calling, and when it calls an FPIES mom it takes nothing less than a woman made of steel- one that can exist on what seems like no sleep to stay up all night comforting a crying baby, one that can push past their own fears to feed a baby food that may end up making them sick in hopes to expand their diet and nutrition, one that has to chart food logs and keep poop journals, one that has to search for a doctor knowledgeable in this allergy -even if it requires them to over advocate for their child, because not every doctor is trained in it and a clinical diagnosis benefits from experience, one that has to put on a strong face when their heart is crying as they watch as their child undergoes procedures and allergy testing to help doctors carve out the individualized care plan their child will need to thrive through this illness, one that has to stand strong and kindly tell a begging toddler "not for you" when they ask for a food that is unsafe or contains unknown ingredients, one that sets aside their own needs and sits with a sick child for hours or even days just to be next to them because the loved ones touch is the only comfort they have after a chronic reaction and the gastrointestinal stress it does to their body.
Motherhood is calling, an FPIES mom.....