We worked out a feeding schedule for his NGT that we feel is something he can tolerate well- without overfeeding him. It gives him ~43-45oz. of Alimentum/day while still allowing him to take his bottles- which we are not pushing but he ASKS for, and drinks every last drop of- his appetite is increased! Part of that is because of not having the IV nutrition anymore. His caloric intakes are about the same (1200-1400 calories/day) as they were on TPN and hemp milk. So we are hoping to see a weight gain this week. If there is no weight gain, and his diapers continue to be mysterious, we may have to look deeper into what is going on. Maybe this is all just adjustment stuff as his gut gets used to the new "food". He still won't drink the Alimentum though so we would be looking at a Gtube if we deem it safe after a few weeks via the NG tube.
His mood has been poor; plays nicely but hits a wall and then just falls apart- so something is bothering him. We just need to continue to take it one day at a time and see what tomorrow brings....
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