- Scope results came back
- Considering TPN
- Functional Medicine
- Decision to hold on TPN
- New Probiotic
- Multi layered treatment plan?
- Back to CHOP?
- Heat rash?
- Progressive weakness and worsening symptoms?
- Scurvy and a PICC line
- CHOP appointments
- The Plan now?
- The FPIES Foundation!
I need to get things ready, clean the house, grocery shop, school shopping, family time, so much to do. As I am doing some laundry, putting a load of clothes in- a card falls down from the shelf above the washing machine. It is titled "Don't Quit". It is a holy card, I don't even ever remember seeing it before although I am familiar with the title. Little things like this are all it takes for me, a little sign to reassure we are being taken care of....our needs will be met. There are so many difficult things about this diagnosis but there is plenty to be grateful for. Don't Quit. A fitting and timely reminder.
When things go wrong as they sometimes will,
When the road you're trudging seems all uphill,
When the funds are low and the debts are high,
And you want to smile, but you have to sigh,
When care is pressing you down a bit --
Rest if you must, but don't quit.
Life is strange with its twists and turns,
As every one of us sometimes learns,
And many a fellow turns about
When he might have won had he stuck it out.
Don't give up though the pace seems slow --
You may succeed with another blow.
Often the goal is nearer than
It seems to a fair and faltering man,
Often the struggler has given up
When he might have captured the victor's cup,
And he learned too late when night came down,
How close he was to the golden crown.
Success is failure turned inside out --
The silver tint of the clouds of doubt,
And you never can tell how close you are,
It may be near when it seems afar,
So stick to the fight when you're hardest hit, --
It's when things seem worst that you mustn't quit.
-- Author Unknown --