Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Sunday, September 18, 2011

Dinner as a family....

Sounds like a simple concept doesn't it?  Something we even take for granted from time to time.   A time when the family comes together, to sit and share....and eat.  

Just when we were at a low time with this and Little man (earlier this week he literally cried, insulted sobs, because dinner was being served).  He simply wants to be included.    We've done ice, and millet puffs, or we just include him at the table and let him play with toys, or sit on our lap; while not focusing on the food.   Well, he's now 27mo. old and that gets more complex, he's a smart little boy.  He "pretends" to eat and chew so well that I've thought he had gotten a crumb or something when he does it.  No, just playing with his pretend kitchen/food....trying to be like everyone else.   We, of course, play along just like you would with any other child- just trying to keep it a healthy growth for him.  Food is everywhere, we can hardly avoid it but we also do not need to be reminding him constantly that he can't have it.   Which is what his tears earlier this week were telling me....

Well, he may only have a few ingredients but I can get creative with those few ingredients.   Thanks to moms like:  Baby B's Mom & Samaya's mommy for inspiration to making creative foods out of simple ingredients; I made some new cookies for Little Man!   Same ingredients (millet flour with his hemp milk formula- so essentially, millet flour + hemp milk + arrowroot starch + safflower oil) but put into little tiny baking cups and he had star, heart, circle, square, oval shaped cookies!!   "Yummy cookies, more please" as he ate them, "yum good"....he is SO excited to be included, and he gobbles up every.last.crumb.  

I hope it is a preview of the food trials to come....that he will willingly ask for foods, the foods will agree with his tummy, and he will ask for "more"!

1 comment:

  1. I just stumbled upon your blog as I was doing an FPIES search....and began to cry as I read. We're there too with our 20 month old. She is not diagnosed FPIES, but neither was her sister who is now 5 years old. Her only food passes are white potatoes, canola oil and salt. Our pediatrician doesn't really "get" FPIES and honestly, I am tired of doctors. We took our older daughter to every doctor imaginable in 3 different states when she was a baby to try and find out what was "wrong" with her....they never figured it out...but I did. :)
    I just wanted to post to say it is nice to read about a fellow mom who understands, because as you know, with our children it is hard to find anyone nearby with our same issues and concerns. Hears hoping to food passes soon for our little ones!