Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Saturday, April 23, 2011

Raising Awareness...

One article, newspaper publication, TV interview at a time.  FPIES families are raising awareness. Raising awareness of the daily struggles of FPIES, what FPIES children look like, what FPIES acts like in their children, the spectrum of this illness, multiple protein intolerances, oh- and did I say the daily struggles of FPIES?    Some articles/interviews (ours included) seem to gear toward the sympathy card, which is understandable, as sympathy creates empathy, empathy creates support, support creates awareness.  

This week, a fellow MN FPIES mom, and close confident and friend in my FPIES world, was featured in a local MN magazine.  It is a beautiful article, about a beautiful girl.   It is well written, and informative.   View it here in this issue of  Health Watch, click to pages 16-17.

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