Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Saturday, April 16, 2011


Almost a year ago now, I met a fellow FPIES mom on the babycenter boards.  She and I quickly formed a bond, she having 3 boys, I having 4.  Our FPIES children being the babies, being just days apart in age.

I know, you're thinking- how many FPIES mommies are you gonna reference here on this blog?   We share so many commonalities, in such an isolating diagnosis, it is hard not to.  When one of them does a post of something that is exactly in my head, it seems silly to re-write the same words....or does it? It illustrates how much we do share.   Yesterday, I was discussing this very thing with someone who asked me how Little Man was doing.....Darkness....

As I said these same words, I thought these same thoughts....this makes me smile and sad all in the same breath.   I smile because of the resiliency of an innocent child and how grateful I am that God gives him that.   But I am sad that he has to go through so much pain and not know what a life without it would even be like.  It is the definition of a chronic illness, and many people go through it....but it does seem unfair that someone so little would have to.   My continued prayer (and Faith) is that it is making him a strong soul....

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