Thankful for...

I am thankful for this little face.   Little man has been recovering from recent "fails" and returning back to a baseline.  His demeanor has been good, great.  His activity level has been good.  His pain has been minimal.  His appetite has been good.   Tomorrow we bring him in for a weight check to see if he is gaining (he should be - he's eating 1000 calories/day, so he is meeting his needs).  But weight loss has always followed his reactions.   Was soy a "reaction"?  It wasn't an FPIES trigger but we still are not sure what the symptoms we saw were- if they were attributed to soy or to food dye.   Whatever it was, it has done it's damage as Little Man's recent scope biopsy's have been coming back and are showing some villous atrophy, along with his inflammation that was visible on scope.  The colon biopsy isn't back yet and that may tell more.  More tests will need to be ran because we are not sure why there is this villous atrophy.   We do know what it means, villous atrophy means malabsorption.  Little man can not afford malabsorption of nutrients on his already restricted diet.   We meet with the GI doctor tomorrow to discuss next steps. 

More pieces to the puzzle...