Despite having visible inflammation (on scope yesterday), Little Man is at what we call his baseline. He eats well, sleeps well, plays independently, learning, growing, typical toddler days.
We anxiously await biopsy results on Monday to (hopefully) tell us more about his inflammation and intestines.
There is a great temptation to stay here at this baseline, maybe even through the holidays. Enjoy the baseline, enjoy Little Man, enjoy our family. But Little Man needs a tiny menu, a tiny menu we haven't succeeded it building him yet- in finding what he can tolerate without pain or reactions- protein intolerance, FPIES, or enzyme deficiency. He enjoys his millet puffs, and peaches continue to go well....what else can we add? What else would be safe? The GI doctor wants a multivitamin, and now wants to consider a acid reducing medication. I am not aware of a multivitamin or an acid medication that does not have corn. I do not feel right doing things that would even potentially set him back when we can trial foods that have better chances of moving him forward....
For now, we enjoy the baseline- enjoy every minute, enjoy his kisses and hugs and cute gestures, learning new words and milestones.
No comments:
Post a Comment