FPIES stands for Food Protein Induced Enterocolitis Syndrome and our youngest son has it. This blog follows his story on this journey: our challenges, our triumphs, our adaptations as we navigate through this new world created by FPIES.
Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Tuesday, October 18, 2016
Nutrition Care for FPIES
This is very near and dear to my heart, nutrition in FPIES. The FPIES Foundation is doing a webinar on October 25, 2016 for Nutrition Professionals. To learn more and register, go here.
Hi Joy.. I sent you a message con Facebook. Im Victoria from Argentina. I think you can help us with oír baby..
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