Mothers Intuition

Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...

Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.

And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

Saturday, August 4, 2012

Gone Camping!

Summer has been busy, even though we aren't doing too much away from home- or not as much as I would like (or typically do) for the boys.   But, in reality, it is a blessing in disguise...the boys get to just "be", we got some quality time with them while little man wasn't so needy and just in general spending time as a family, finding ways to maximize the summer hours while still meeting little one's needs (of eating every 2hrs, not getting over heated,etc).  

We have continued to push the ProViMin and the recipe with the double hemp milk has helped his energy level considerably.  And lately, he is really sprouting in developments of language and other skills (writing, drawing,etc) and it's been fun to watch him learn more everyday. He's not been overtly behind on his development, the skills are there- just not enough chances to practice them between being sick so getting to see him just sit and draw, create pictures, learn new words and is fun and rewarding...and not lost on us. 

When I updated last, we were on our way camping.   We left on Friday after a lab draw.....hubby had went ahead of me with the 3 other boys to be there for the week, in a borrowed RV- from a close family friend (another firefighter family).  Without the RV, we couldn't consider taking little man- for 1). it was a week, a long time to be camping with a child with special dietary needs and 2). hubby would have taken the van (and a tent), so we wouldn't be able to join him for just the weekend, which is what we were doing now.   I drove up with little man, who slept much of the way (thankfully) on Friday.  

He was SO excited to see daddy and his brothers, and Papa and Gma and to BE CAMPING!!  This little boy LOVES the outdoors.   Thankfully, Saturday was "only" in the 80's or so and he was able to be outside most of the day, we took him into the (air conditioned camper) after lunch to get him cooled down and hopefully get a nap out of him but no going, once he had a bottle and was cooled down- he wanted to be back outside, and soaking up all he could.   Hubby ended up taking him for a drive in the van down the road later that afternoon because he was so tired and overheated and needed some downtime.   Sunday came and we weren't sure if we were going to go home Sunday or Monday morning but with the forecast for the 90's and he was already showing signs of overdoing it on Saturday, I didn't want to push our luck so we drove back on Sunday afternoon (a that took us more like 8hrs coming and going)- he again slept alot of the drive.   He was glad to be home and even more excited when daddy and the boys got home on Monday night.  

No comments:

Post a Comment