Little man now has a G tube....
I'm not sure if it has fully sunk in yet as we are just
concentrating on his recovery and healing for now and it's been a long day. He was 2nd case so
didn't get started until around 11am, and was done and back to his room a
little after 1pm. He woke up rough, as he usually does but calms down
right away when he sees us. The surgery earns him a bit more pain meds
(IV), so those kept him sleepy for a few hours, which was helpful (for him and
us). Once he woke up- he was in pain and he knew exactly where it was
coming from because he kept trying to touch his site. We were able to get
him some IV pain meds and that helped significantly. After the pain meds,
he slept off and on all afternoon- so I mostly snuggled with him.....he is
being such a trooper! I wasn't sure how he was going to perceive his new
appliance and so far, he's doing well with it; so I pray he continues to be ok
with it.
Our concerns are quickly shifted as he spiked a fever that
evening (102, that quickly climbed to 103) - the surgery team came by and they
didn't feel it is from his surgical site as they feel that would be fast for an
infection to set in and he's not showing any signs of extra swelling or
sensitivity around the site. They said that some people develop fevers
from the body stress. The other possibility is that it is a simple, but
ill timed, virus. His brother has had a cold, and was running a fever on
Sunday/Monday so maybe he simply caught it?
An endoscopy with biopsy's was also completed while he was
out for surgery which the initial results showed no new damage in his
intestines so now we anxiously await his biopsy results to tell us more about
the state of his villi.
We were surprised to see that he has had virtually no weight
gain in the 4 weeks since dismissal. We will see what the weight tomorrow
says because maybe today's was just off from fasting. All the nurses
were commenting on how much taller he looks so maybe he just grew in length
instead!?
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