Have you ever had an instinct? An instinct that begins as a gnawing...Then grows into a raging burn; a burning instinct that something is wrong...
Your baby continues to get sick from the very foods he is supposed to thrive on. I did. I am a mom of a little boy just diagnosed with FPIES.
And that burning feeling now? Extinguished. My instincts? Stronger than ever. Guiding me, with my faith, as we navigate through the murky waters of our new world created by something called FPIES.
"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."
Friday, December 31, 2010
Stuck Like Glue
In this world, of a chronic illness like FPIES, the journey has taught me more about taking the moments and stealing what you can from them. Little Man loves music, as most toddlers do. Music can turn a mood around, turn a day around. Music can inspire and draw up meanings, remind us of times gone by, and put words to moments in life. There are a few songs that will likely always remind of 2010 and the ups and downs of our FPIES journey. This one "Stuck Like Glue" by Sugarland is one of those songs. So, click on the link and dance with us....
....because no one knows (Little Man) better, no one can make (him) feel so good, no one thought we could....and just when I think I've had enough.....you give me that look, baby....there you go making me feel like a kid....Whutooo whutooo, Stuck like glue. You and me baby we're stuck like glue. Whutooo whutooo....Some days you know I wanna just give up. When it doesn't matter who's right, thought about it all night had enough, You give me that look...You do that thing that makes me laugh....just like that....there you making me feel like a kid....Melodies that get stuck, Up in your head whutooo whutooo. Up in your head, whutooo whutooo...... Stuck like glue, you and me together, it's all I wanna do.....
I hope you enjoy it as much as Little Man, his brothers and I do.
Happy New Year!