Is the news heading to the article: Overcoming FPIES. It is a brief discussion of the newscast that features a fellow FPIES family: Med Watch: A rare food allergy doctors know little about.
The family's story is something that hits close to home for many FPIES families...."I googled baby vomits rice cereal"- wow, did we all do that? Because who in the heck is allergic to rice? FPIES kids are, it's bizarre but very real, and scary. This mom's account of her daughter's reaction is an emotional account for any FPIES parent, as her daughter is one of the numbers of FPIES that went into full shock with the ingestion of rice. We are thankful, our little man has experienced shock symptoms but not to this degree. The statistics show that ~20% of FPIES children do (although I would dispute that number to be much higher based on what is shared in support groups). The interview is a window into an FPIES families world.
The news report includes an interview from the family physician who helps manage their daughters care, with emphasis on the need for ruling out other conditions, and the symptoms caused from an FPIES reaction.
Thank you to Ginny and her mom for a great awareness story on FPIES!!
Showing posts with label News. Show all posts
Showing posts with label News. Show all posts
Wednesday, July 27, 2011
Thursday, March 10, 2011
Local Boy Has Rare Food Allergy Disease....
is what the title to this KAAL News Story is.
In efforts to raise awareness, Fallon Schultz has been contacting, and getting interviews with, her local news programs. Last week, her son was featured in this article. This morning, he was featured on ABC national news, with a TV interview set to air next week (Tuesday). I've been contemplating how/when I will contact local news here as well, and this was just the ticket!
Another FPIES mom (thanks Kendall) knew I would be excited about his story and e-mailed it to me this morning. We both thought, why not contact local papers and news? I looked up the 3 main ones here in our city, and contacted them through their websites- just sending them a quick e-mail that this story is being highlighted nationally, would they like the opportunity to tell it locally as well? I barely sent the message and got a reply back- the reporter wanted the story right away. I had the chance to take a break from work to run home to do the quick interview. My goal is to raise awareness to help other families and I feel they did our story justice and I am grateful they responded to the call.
In efforts to raise awareness, Fallon Schultz has been contacting, and getting interviews with, her local news programs. Last week, her son was featured in this article. This morning, he was featured on ABC national news, with a TV interview set to air next week (Tuesday). I've been contemplating how/when I will contact local news here as well, and this was just the ticket!
Another FPIES mom (thanks Kendall) knew I would be excited about his story and e-mailed it to me this morning. We both thought, why not contact local papers and news? I looked up the 3 main ones here in our city, and contacted them through their websites- just sending them a quick e-mail that this story is being highlighted nationally, would they like the opportunity to tell it locally as well? I barely sent the message and got a reply back- the reporter wanted the story right away. I had the chance to take a break from work to run home to do the quick interview. My goal is to raise awareness to help other families and I feel they did our story justice and I am grateful they responded to the call.
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